It's important to listen to what your body is saying because it could save your life. Your body will tell you when something is wrong. So, keep your ears and mind open! 

I Was Diagnosed With Long QT

by Jodi Shaw

Happy weekend everyone! It’s been a hellish week for me. I’m a total stress-bag right now. It started when we decided to celebrate a night out with friends. I wasn’t feeling too hot. When we got to their house and I stepped out of the car, I instantly felt dizzy and sick. The urge to throw-up way overwhelming. My anxiety, of course, shot through the roof. So DH called an ambulance and they took me in. We don’t realize how bad something is until it happens to us. It turns out my heart was beating rapidly but for a reason. I have something called Long QT, a condition which affects the repolarization of the heart after a heartbeat. In a nutshell, it means that basically, my heart skips a beat which can cause fainting, drowning or sudden death. Each episode is triggered by stress. Like I need another crap-apple on my plate.

Featured photo by Deniz Altindas on Unsplash

There are many drugs that actually cause Long QT such as anti-anxiety and bipolar medications.

Dealing with the salt in your body and stress can help keep Long QT under control.

Sometimes surgery is required or other medications to help the condition.

I needed a shopping day and I found some adorable dresses online while trying to keep myself calm and not think about how severe this is.

Symptoms of Long QT are fainting, quick heartbeat, weakness, and blurred vision. A fainting spell can occur without warning. Another common sign of Long QT is seizures caused by the heart beating abnormally.

Photo by Deniz Altindas on Unsplash

Overall it was a bummer weekend and I hope next weekend gets better. I’m not a doctor and I don’t pretend to be but if you guys suspect that you might suffer from Long QT, please go and see your family doctor immediately. It’s funny how body talks to us. It tells us when it feels good or bad. We just don’t always listen. So open your ears because knowing what is going on with you and your body just might save your life!


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JP Shaw June 11, 2010 - 11:01 pm

Hi Victoria, so far nothing has really changed except I take better care of myself and I am on gravol at night to help with the anxiety which can increase my heart rate.I actually discovered my Long QT was inherited from my mother my boys are okay though, still young and eat right and exercise lots.I'm sorry about your upside situation, it's scary I know. I wish I had more information for you. I spent a lot of time online and researching. If there is a group for support out there use it, it will come in handy on the down days.Remember as much as you feel it. You aren't alone!

Victoria Pepper June 11, 2010 - 7:35 pm

I happened upon your blog, looking for another Mom that might have been recently diagnosed with Long QT syndrome. I was "prediagnosed" in January and genetically diagnosed in March. 2 of my 4 children have been tested. My oldest two boys are 23 and 21 have to go sign up to get tested as they are over 18… one doesn't plan on being tested as he is a college football player and doesn't want to know. My 14yr. old son was negative for LQTS but my 8 year old daughter was positive. My life has been turned upside down. I read more of your blog…its great and you remind me of myself so very much. Just wondering if you found out anything else on your Long QT? Are they doing genetic testing? Would love to hear more….as I have felt pretty much alone in all of this…. Victoria


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